About Mended Little Hearts

Mended Little Hearts (MLH) is the nation’s largest congenital heart disease (CHD) support program. Starting in 2004, it currently has 63 chapters in 30 states. MLH is a program of Mended Hearts which has been supporting heart patients and families since 1951. MH and MLH have over 21,000 members, 285 chapters, and visit 185,000 patient and family visits annually.

Mission: To inspire hope and improve the quality of life of heart patients and their families through on-going peer-to-peer support, education, and advocacy.
Vision: To be the premier nationwide resource and peer-to-peer network for all heart patients and families affected by heart disease across the lifespan.

Mended Little Hearts Facts:

  • Mended Hearts and Mended Little Hearts Accredited Visitors conduct over 185,000 visits to patients and families annually. We work with over 460 hospitals around the nation.
  • There are more than 21,000 members of Mended Hearts and Mended Little Hearts and over 90,000 followers on its national and chapter social media venues.
  • MLH gives out over 5,000 Bravery Bags and distributed over 5,100 Mended LittleHeartGuide Lites (print version) in English and Spanish in it the first 7 months it was available. The digital MendedLittleHeartsGuide has had over 6,000 views each year.
  • MLH partners with hospitals to provide peer-to-peer programs and educational programs.
  • MLH’s annual CHD Symposium empowers between 120-160 parents, patients and others in-person and has more than 12,000 video views annually (21,000 in 2018).
  • More than 990 people participated in MLH’s 6th Annual Rock Your Scar photo contest and CHD Awareness campaign.
  • MLH Advocates for CHD research and on issues that affect CHD patients and families.

CHD Facts*

  • Congenital heart defects (CHDs) are the most common birth defects in the United States, affecting approximately 1 in every 110 (about 40,000) babies each year. One in 4 of them will need surgery or medical intervention to survive.
  • There are 2-4 million Americans living with congenital heart defects. Because there is no U.S. system to track congenital heart defects beyond early childhood, more precise estimates are not available.
  • For many forms of CHD, surgery is not a cure. Congenital heart disease is a lifelong condition requiring specialized care, and often additional surgeries and medications are needed later in life. Most causes of congenital heart defects are unknown.

Resources

To learn more about Mended Little Hearts, please contact us at 1-888-HEART99 (1-888-432-7899) or info@mendedlittlehearts.org

*CHD Facts from the Congenital Heart Public Health Consortium www.chphc.org.

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